Hemophilia Health Record Software

People with hemophilia should keep health records to effectively manage their bleeding disorder and ensure comprehensive care. Maintaining a health journal allows individuals to track symptoms related to bleeding episodes, such as joint pain, swelling, or bruising. They can also record potential triggers that may lead to bleeding, such as injuries or strenuous physical activities. Regular measurings of clotting factor levels are essential to monitor their bleeding disorder's severity and adjust treatment accordingly.

Keeping a record of medications, including clotting factor concentrates or other therapies, helps ensure timely administration and proper dosages. Additionally, individuals can document any procedures or surgeries they undergo, such as joint injections or port placements, to track their medical history accurately and facilitate communication with their healthcare team for tailored care.

Sample health journal entries that can be entered into Goopatient*:
Date: July 28, 2023
I will take it easy on physical activities for the next few days and use ice packs to reduce the swelling in my #knee.
Today, I noticed mild #swelling and tenderness in my left #knee joint. The area feels warm to the touch, and I experienced some discomfort while walking.
The swelling in my #knee might have been triggered by a minor fall I had yesterday while playing with my kids.
In response to the symptoms, I infused one dose of my prescribed clotting factor concentrate #Advate this morning.
I have an upcoming appointment at the hemophilia treatment center for a routine #clotting_factor level test to assess my current condition.
I will be seeing my hematologist #Dr.Brown next week to discuss the recent swelling in my knee and review the results of the clotting factor level test.
*These health records are not real, but compiled by Dr. Mike Stanton of the UCLA Health Center. The data that you put in Goopatient is totally private and stored only on your computer.