ALS Health Record Software

People with ALS should keep health records to closely monitor their condition's progression and collaborate effectively with their healthcare team. Maintaining a health journal allows individuals with ALS to track symptoms such as muscle weakness, twitching, difficulty swallowing, and changes in speech, which can provide insights into the advancement of the disease. They can record potential triggers, such as activities or stressors that worsen symptoms, helping them make necessary adjustments to their daily routines.

Additionally, tracking measurements like muscle strength, lung function, and weight can assist in evaluating disease progression and the effectiveness of treatments or interventions. Monitoring medications, including muscle relaxants and therapies for symptom management, can ensure adherence to the prescribed treatment plan. Regularly recording lab test results, such as electromyography (EMG) or blood work, can help healthcare providers assess ALS progression and provide appropriate care.

Sample health journal entries that can be entered into Goopatient*:
Date: July 28, 2023
To address the #swallowing_difficulty, I will opt for softer and easier-to-swallow foods during meals. I also plan to practice speech exercises recommended by my speech therapist to maintain communication abilities.
Today, I experienced increased #muscle_weakness in my arms and legs, and I noticed slight difficulty in swallowing during mealtime. Speech slurring was also more pronounced than usual.
I suspect that physical exertion during #physical_therapy yesterday might have contributed to the increased muscle weakness today. Additionally, feeling stressed about an upcoming appointment might have affected my #speech.
I took my prescribed muscle relaxant medication #Relax-DS 50mg this morning to manage muscle spasticity.
My spouse assisted me in measuring my #lung_capacity using a spirometer, and the readings indicated a slight decrease compared to my last measurement.
I had a scheduled visit with my neurologist #Dr.Brown today, and we discussed the progression of my symptoms and adjustments to my treatment plan.
*These health records are not real, but compiled by Dr. Mike Stanton of the UCLA Health Center. The data that you put in Goopatient is totally private and stored only on your computer.